In December my darling husband had a brain bleed stroke. He spent two months in the hospital and then rehab before regaining the health he needed to come home.

But he wasn’t whole, or healthy. He came home and needed a lot of care. And while he’s improved, he still needs me more than ever.

Thank God I work from home.

In addition to some cognitive issues, he’s mostly paralyzed on his right side. His movement is coming back, but slowly. And so I find myself in another season of caregiving.

Nothing he needs is difficult. It’s only that the requirements are numerous. During the day I might be called from my desk to help him perform some basic functions. Or fix the TV. Or let in the many therapists that come into our home weekly.

He cannot cook for himself, so I cook for all of us. I am managing his medication and his insulin. I am managing as well his doctors’ appointments.

This isn’t the first time I’ve been called into a caretaker position. I took care of my mother as a teenager when she became chronically ill. I cared for my grandmother for a time after surgery. I cared for my mother-in-law as well for years when a simple back surgery led to one complication after another.

Caring for him is not easy. I’m not naturally patient or particularly nurturing. And while nothing I need to do is overly difficult, there are constantly things that need to be done.

Days feel so long sometimes. And it often feels like my brain is full of fiberglass, slowly yet constantly scratching and cutting me.

Two things can be true at the same time. I am frustrated with caregiving. But I am also so thankful that he’s home and alive. Because that was not a given when this shitshow started.

But we’re not here today for me to air my grievances or even rejoice in the fact that he’s still alive. I’m here because I’ve learned a lot about caregiving. And while I’ve spoken before about being a writer while also being a caregiver, I’ve never talked about specific caregiving advice. So, since that’s what’s filling up my days right now, that’s what we’re going to talk about today.

So here are some lessons I’ve learned in caregiving.

You’re gonna mess up

I have messed up so, so many times while caring for my husband. I’ve forgotten to give him his meds. I’ve accidentally tipped him out of his wheelchair. I’ve lost my temper badly enough that I needed to leave the house for a bit to calm down.

None of us are perfect. And when we’re caring for a loved one at home, we’re basically on call for a job we did not sign up for and are not getting paid for around the clock. So yes, we are going to make mistakes. But honestly, most of the mistakes are liveable. We learn, we correct, and we apologize when we need to. And we go on to make different mistakes the next day.

So long as no one’s bleeding and everyone’s breathing, we can try again the next day.

You’re gonna need help

This has not been a solo project on my part. The husband’s parents have helped when they can. We’ve had physical and occupational therapists in, helping him heal and teaching me how to care for him. His doctor has helped. And my friends have been a constant well of support.

Don’t be afraid to ask for help when you’re trying to care for someone. It’s a massive job, and no one should be expected to do it alone. You might need some extra cash, or someone to come help clean up the house a little. Even just someone to listen to you while you lose your mind a little. Lean on the people you have to lean on. Otherwise, you’re going to crumble.

You’re gonna have to let some things go

Sadly, a lot of my writing has gone on the back burner. Some days I get to it. Most days I don’t.

I don’t usually cook dinner. I get a lot of frozen meals, and we’ve been eating out a lot. I’ve also just straight-up made tuna sandwiches when I didn’t even have the energy to Doordash something.

Fed is best.

But my house has been messy, my writing’s been ignored. And sadly, I’ve had to say no to some opportunities I wanted to take part in.

Right now, I have to prioritize my mental health and his overall health. Everything else is debatable. Everything else can be put off for another day.

Don’t forget that ‘care’ is the first part of this

This was the hardest lesson I’ve learned. And it was one of the things I messed up a lot at first.

There are a lot of things that need to be done every day. The cleaning and cooking and caring for things like medicine and baths. The laundry is a constant battle. The dishes snicker at me when I walk past. At least two plants have died.

But the most important thing about caretaking is caring for this person. Making sure they’re okay emotionally. Sometimes that means just sitting with them, and letting them talk about their problems. Sometimes it means having patience to let them try to do things when it would be so much easier to do the thing for them. Sometimes it means holding a heating pad in place, or bringing another cool washcloth, or just assuring them that you’re right there, and you’re going to be right there, for as long as it takes.

At first, I was impatient with this part. I had things to do, important things that I had to do to keep us all alive. I didn’t have time to sit down and hold his hand through this. I needed to make sure he had something to eat and was clean, and doing his exercises, and a thousand other little things.

But none of that matters as much as the real caretaking work. The caring enough to slow down, and help the person you love process what the world looks like to them during this time.

Overall, the biggest lesson I’ve learned is this. He and I, we’re on this journey together. We’re healing together. And when I look at the situation that way, things are more manageable. It’s easier to keep everything in perspective when I see us as a team.

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