I didn’t mean for this post to be late today, but it does kind of fit into the theme.
My husband has several chronic illnesses. I don’t want to go into details because that’s not my story to tell. Suffice it to say that caring for his health is a full-time job for him and a part-time job for me.
If you’ll recall, I also have a full-time job, as well as trying my damndest to have a writing career.
Having a partner with chronic illness is a journey. It’s difficult to watch someone you love suffer. It’s terrifying to come close to losing them. It’s hard to make plans for the day, let alone the future when you just have no way of knowing how their health is going to be from day to day. Some days he’s fine, some days he can’t get out of bed. Some days he goes to the hospital.
There are countless books and blogs about living with a partner with a chronic illness. That’s not what I’m here today to talk about, that’s way out of my lane. What I do want to talk about is maintaining a creative career while caring for a loved one with a chronic illness. Because it’s what I’ve been doing for almost ten years now.
You do not have to keep writing for an audience
Let’s just get this out of the way first. If you don’t want to keep writing for anyone but yourself. I don’t care if you are in the middle of a series. I don’t care if people are waiting with bated breath on the cliffhanger of a lifetime. I don’t care if you’re Stephen King. If Tabitha King suddenly took a nose dive health wise I would light a candle for her and expect to never see another King book.
The people you love will always be more important than any success you might find in this world. If you don’t have the physical or mental bandwidth to create for days, weeks, or even years at a time, that is okay. You don’t owe your art to anyone. Everything else in this post is for people who want to keep going.
Don’t feel guilty
That being said, you do not need to feel guilty if you want to keep writing. My writing career has gotten me through some very dark moments. Having work that I was passionate about has given me something to focus on when I felt useless. It gives me something that is for me. And we all deserve something that is for us. We all need something that is for us.
Be realistic about how much you can take on.
I might seem like the worst person to talk about this. I’m working on a sci-fi series, a podcast series, multiple short stories, writing for this blog, and writing reviews on Haunted MTL. And yes, sometimes that is too much. That’s why this post came out in the afternoon instead of in the morning.
But let’s be fair, there’s always more I could be doing. Things I’d like to do. I’d like to create audiobooks. I’d like to write a serialized story on Wattpad. I’d like to make a true crime podcast series, enter more contests, write more short stories, do more micro-fiction on social media. I want to do so much more than I realistically can do.
Here’s what I suggest. Make a list of everything you want to do. All the projects you would love to work on. Take your time.
Then, list all of your projects from the ones you most want to do to the least.
I keep a whole list on Notion at all times. Sometimes projects drop off the list, and sometimes more get added. But I’m always putting my energy on the top priorities of that list. So if I can only get one thing done, it’s at least the most important thing.
Learn to write in strange places
I am so blessed to have an office in my home. I use it to work from home and write my stories and I love it. It’s bursting with light, colors, art and books. I have ample desk space, a comfortable chair and a place for all my pens.
I don’t always get to write there, though. I have gotten very good at writing in waiting rooms and hospitals. I have written in a notebook balanced on my knees in an uncomfortable plastic chair. I have written on my laptop, sitting on an emergency room couch and trying not to think of what sort of fluids that couch might contain. I’ve written in cafeterias, on patios, with bad cups of coffee and the same Lipton tea every hospital seems to have.
Because of this, I’ve always kept a writer’s bag. I can do an updated post about this if you’d like. I don’t go anywhere without a notebook and pen. Even if I don’t know I’m going to be stuck somewhere for a time and might as well do some writing, I might suddenly get stuck somewhere and be inspired to write a little short fiction.
Be flexible
This one sort of goes along with the last piece of advice.
When you’re dealing with a chronic illness, things cannot always go to plan. This is true for most of us anyway. Washing machines break. People call off at work so you have to go cover for them. The power goes out. The internet goes out. People with chronic illness and their families aren’t immune to these things. We just have that extra hurdle of health to consider. I might be right on pace to meet a deadline, or get a blog post out in time, and suddenly get waylaid because a health concern took precedence.
This is why it’s important to under-promise when it comes to deadlines. Whether you’re working with a publisher or just setting a deadline of your own. If you think something’s going to take a week, plan for two. Trust me, no one is ever angry that you beat a deadline.
You have to be ready for your day to not look how you expected it to look, and roll with it. Trust me, I hate this. This is not where I thrive. I thrive when everything happens exactly how my Google calendar says it’s supposed to happen. I am mentally prepared for that, I have supplies and snacks for that. But we don’t always get to live the day we planned for. We have to live the day we have.
I have a lot more to say about this topic, but we’re running long as it is and this post is late as it is. So I’ll be doing part two next week. See you then.
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